Have you ever played the ice breaker game 2 truths & a lie? Well if you haven’t it is where you are to think up 2 truths (could be unique or simple) and a lie about yourself, then the others are to guess which are the truths and the lie. This game to me always seemed fun cause my truths always seemed questionable. My three were:
- I have broken 20 bones
- My dad use to be a stunt double in his early twenties
- I can touch my nose with my tongue.
Some people would pick 1 & 3 as the truths, but most were so confused by the extreme of the first two they weren’t sure. Which are the truths? Number 1 and 3 are the truths!
When I was born I was diagnosed with Osteogenesis Imperfecta (OI), also known as Brittle Bone Disease. There are six types of OI, my type being the most common, which is Type 1. It is hereditary so both my dad and sister have it. From the age of 5 to 22 I have broken 20 bones, fortunately I haven’t had any breaks since 22 (knock on wood). You might think, does that mean if you fall or bump something you break? Not necessarily. My most ridiculous break was when I tripped over a child while working daycare and my most extreme was breaking 11 bones in a car accident (which I will talk about in a later post). Most people with my form live normal lives, but we set limits to what we can do. Unless you are like my dad who would test those limits, which is why he has broken over 40 bones.
I am very lucky that I do not have the more severe types of OI. There are many that can break just but getting out of a chair too fast or land too hard. Life expectancy can be short as well. Their lives include multiple surgeries and majority of their life is in casts. I will say though, the individuals that do that these types are some of the hardest fighting individuals I’ve seen and most positive when it comes to injuries. They live each day as their last and handle breaks like champs.
As I said in my last post, Tommy and I have been trying to conceive for the last 4 years. One thing I use to be scared of was will my child have OI and if so is it possible for them to have a different, more severe type? During our treatments a while ago I got the opportunity to meet with a Genetic Specialist where they told me:
- There is always a 50/50 chance that the child could have OI
- If the child does, it would be the same type I have.
This was so important for me to hear, as it made me prepare myself in case my child would have a more severe case. No matter what I would love that child, but a child with a more severe type is harder to bring up and I wanted to be prepared.
Even though my disease has made my life a little harder I definitely wouldn’t want to change it. This disease has made me stronger in so many ways, not just physically. I grew up knowing limits and how far to push them. I believe God gave me this disease not as a punishment, but a gift to help others who struggle with it. The strength I have developed has helped me in more ways in life.
If you have OI or know someone with it I would love to hear your story below! Thank you for reading. Next post I’ll be discussing my other and last (haha) disorder and how I dealt with it as a kid.